20May2024
COVID-19 Big Hearts Policy Update Calling All Climate Champions To Apply

Our Philosophy

Our Commitments
and Goals

Our organization is built on three pillars: educate, support, and donate. We believe that by focusing on these pillars, we can make a meaningful impact in the lives of individuals and families affected by sickle cell disease.

Educate

Support

Donate

At The Agape Roots Foundation, we prioritize patient education. We understand that navigating life with sickle cell disease can be challenging, which is why we strive to provide comprehensive and accessible educational resources. Whether you're a caregiver, parent, or medical professional, our goal is to equip you with the knowledge and tools necessary to better understand and manage sickle cell disease.

We recognize the importance of providing a safe and supportive space for individuals and families to share their stories, memories, trials, and triumphs. Through Agape we aim to foster a community where everyone affected by sickle cell disease feels heard, understood, and supported. Additionally, we offer resources and guidance to families and caregivers, as well as facilitate connections with medical professionals who specialize in sickle cell care.

Raising funds for community-betterment initiatives is at the heart of our mission. We believe that by investing in initiatives that empower warriors and caregivers, we can create a brighter future for those affected by sickle cell disease. Your donations enable us to support vital research, advocate for better healthcare policies, and provide essential resources and services to individuals and families in need.

740
k

hospitalized
for SCD

90
4%

African
American

40
.8%

Hispanics

10
.8%

Caucasian

Mission

Goals

Vision

Spreading Awareness

Sickle Cell Anemia is the Rarest Genetic Disease

At The Agape Roots Foundation, we believe in faith, unity, and action. We’re raising funds and promoting initiatives to serve the people who need us most. We believe in taking action with urgency in order to raise public awareness about Sickle Cell Anemia in all forms and the pressing issues individuals diagnosed with the trait and disease face in today’s society. Join us by supporting our efforts to make a measurable difference in the lives of others.

10020
k+

diagnosed with
SCD in the US

1-
30
M

people with SCT
in the US

1 in 3

African American donors antigens are a match for a SCD patients.

Uniting

People who Suffer From Sickle Cell Anemia

Educate: Develop and implement educational initiatives to raise awareness about sickle cell disease within our community.

Support: Provide tangible support to individuals and families affected by sickle cell disease through community care packages.

Donate: Foster a culture of sustainable community driven work, generosity, and philanthropy within our community by facilitating donations to support initiatives benefiting the sickle cell community.

Acknowledge the past and look towards the future: Shift the narrative surrounding sickle cell disease by sharing empowering stories of resilience, hope, and triumph within our community.

Changing

Vision

Our organization envisions a future where the sickle cell community receives unwavering support and advocacy, leading to increased awareness, improved access to resources, and ultimately, enhanced quality of life for all individuals affected by the disease. 

Through educational initiatives, tangible support, fundraising efforts, and impactful storytelling, we strive to create a world where every individual living with sickle cell disease feels empowered, valued, and celebrated for their individuality and uniqueness.

Meet The Founder

Become a Volunteer

Why We Need You

Community Building

Volunteers are the heartbeat of the sickle cell community, bringing diverse skills, experiences, and perspectives together to create a supportive network. Whether it's organizing events, providing emotional support, or raising awareness, volunteers play a pivotal role in building a strong and vibrant community for individuals and families affected by sickle cell disease.

Advocacy Powerhouse

Volunteers are powerful advocates for change within the healthcare system and beyond. By lending their voices and expertise, they can raise awareness, influence policies, and drive positive outcomes for the sickle cell community. From lobbying lawmakers to participating in awareness campaigns, volunteers are instrumental in advocating for better access to care, research funding, and support services.

Hands-On Support

Volunteers provide invaluable hands-on support to individuals and families living with sickle cell disease. Whether it's accompanying patients to medical appointments, providing respite care for caregivers, or assisting with daily tasks, volunteers offer practical assistance that can make a world of difference in the lives of those affected by the condition.

Promoting Education

Volunteers play a crucial role in promoting education and awareness about sickle cell disease within their communities. By sharing their knowledge, personal experiences, and resources, volunteers help dispel myths, reduce stigma, and empower others to become advocates for change. Whether it's hosting informational sessions, distributing educational materials, or engaging in outreach efforts, volunteers are essential in raising awareness and promoting understanding about sickle cell disease.

CEO Message

Helping Today. Helping Tommorow

Together, we believe in the power of community, love, and shared experiences to bring about positive change. Join us as we strive to raise awareness, offer support, and spread a message of hope, love, and unity as we all aim to not just survive, “but to thrive; and do so with some passion, compassion, some humor and style.”      -Dr. Maya Angelou

No one can do everything, but everyone can choose to do something. This is my something.

Jessica Brown

Founder