Sickle Cell Anemia
Sickle cell anemia is a rare, inherited genetic blood disorder that affects the shape of the bodies of red blood cell.
How are we Helping in Making a Change
Raising Awareness
Agape Root educates the community about sickle cell disease, promoting early diagnosis and compassionate support.
Blood Donations
Agape Root organizes blood drives to ensure a steady supply for individuals with sickle cell disease, aiding in managing complications and crises.
Supportive Services
Agape Root offers support groups, counseling, and advocacy efforts to empower those with sickle cell disease and their families.
Blockage of Blood Vessels makes it Difficult for Blood to Flow
Losing Shape
Sickled red blood cells are stiff and vary from the pliable round donut shaped discs that are seen in a healthy red blood cell.
Pain Crisis
It is difficult for sickled cells to pass through narrow blood vessels without causing blockage. Blockages can happen in any part of the body where blood flows but is most commonly monitored in the limbs, chest, and brain.
Vein Blockage
The blockage of blood vessels makes it difficult for blood to flow and oxygen to be carried to necessary parts of the body. The result of this blockage is often termed 'Pain Crises'.
Red Blood Cells Do not live that Long
Normal red blood cells make up about half of your body and live in the body for about 120 days. Sickled red blood cells have a shorter span of about 10 to 20 days, causing the body to constantly work to replenishing old cells with new cells.
LifeSpan of normal rbc
LifeSpan of Sickle Cell rbc
They Break
The Process of Red Blood Cells Breaking down is called Hemolysis.
Due to lower hemoglobin protein often found in sickle cell patients this makes it difficult to effectively replenish red blood cells. This results in individuals diagnosed with the condition becoming anemic and requiring frequent blood transfusion procedures in order to replenish their healthy blood supply and maintain a seemingly regular lifestyle.
Caregivers Managing Sickle Cell Disease
Managing Sickle Cell Patients can be Hard here is a 5-step walkthrough scenario for caregivers managing Sickle Cell Disease:
Step 1: Understanding and Explaining Sickle Cell
Sickle cell disease is a genetic blood disorder where the body produces abnormal hemoglobin, causing red blood cells to become rigid and sickle shaped. These cells can get stuck in blood vessels, leading to pain, organ damage, and other complications.
Step 2: Pediatric Scenario - Signs to Watch Out For
As a parent of a child with sickle cell disease, it's essential to be vigilant for signs of a sickle cell crisis. Watch out for symptoms such as sudden pain, swelling, fever, pale skin, fatigue, and difficulty breathing. If your child experiences any of these symptoms, it's crucial to act quickly and seek medical attention.
Step 3: Daily Preparation Tips
To better handle sickle cell symptoms on a daily basis, consider these practical tips:
Keep a packed emergency bag ready at all times, stocked with extra medication, a change of clothes, chargers for electronic devices, important documents (such as medical records and insurance information), and a list of emergency contacts.
Stay organized by maintaining a schedule for medication doses, doctor's appointments, and routine check-ups. Consider using reminder apps or setting alarms to stay on track.
Ensure your child stays hydrated by encouraging them to drink plenty of water throughout the day. Dehydration can trigger sickle cell crises, so it's essential to keep fluids handy, especially during hot weather or physical activity.
Prioritize rest and relaxation to help your child conserve energy and prevent fatigue. Encourage them to take breaks when needed and create a comfortable environment for relaxation at home.
Step 4: Emergency Preparedness
In case of a sickle cell crisis or other medical emergency, it's crucial to be prepared: Try to remain calm,
Familiarize yourself with the nearest medical facilities and their emergency procedures. Keep a list of hospitals and urgent care centers in your area, along with directions and contact information.
Educate family members, caregivers, and school personnel about your child's condition and what to do in case of an emergency. Provide them with copies of your emergency contacts and any relevant medical information.
Stay calm and composed during emergencies and trust your instincts. Remember that you're not alone, and help is available when needed.
Step 5: Seeking Support
Don't hesitate to reach out for support when needed. Connect with other families affected by sickle cell disease through support groups, online forums, or local community organizations. Sharing experiences, advice, and resources can provide valuable support and encouragement along your journey. Remember, you're not alone, and together, we can navigate the challenges of sickle cell disease with strength and resilience.
